Being diagnosed with an uncommon cancer like a neuroendocrine tumor (NET) can feel isolating or overwhelming.
NETWise, a podcast about neuroendocrine cancer, is here to help patients and caregivers navigate the world of NETs. Listen in as the NET Research Foundation (NETRF) speaks with experts and patients who will help us to understand NET diagnosis, treatment, and everything in between. NETWise is for everyone, from newly diagnosed patients to longtime survivors as well as caregivers and family members. This is your guide to learning, listening, knowing, and being NETWise.
In the last episode of NETWise, we talked about a moment of transition – the time right after someone receives a diagnosis of NETs and the feelings of grief that can follow. This episode discusses the next part of the journey- how to navigate through the emotions, symptoms, and treatments of NETs while one continues to manage life responsibilities and relationships while living with NETs. This episode addresses survivorship and how one starts to navigate their new normal.
This is something special for NETWise. This is the pilot episode of a new project we’ve begun, translating the NETWisew series into Spanish! We’ve started with the very first episode of the show, from back in August of 2019, which lays out the most basic and foundational information about what NETs are and how they work. If we’re able to do more of these, and we hope to, it will move to its own podcast feed to be a resource for a whole new segment of the NET community. For now, please share this with Spanish-language speakers who would find it valuable, and we’ll be back next month with a brand-new episode of the series in English.
While most neuroendocrine tumors are low-grade and slow growing, there are some that are high-grade and very aggressive. These high-grade NETs and NECs are treated very differently. In the newest episode of NETWise, we turn the spotlight on high-grade NETs, talk with NET physicians about the treatment challenges, and hear from a patient and caregiver about dealing with the diagnosis.
Very often, the liver is the first and most significant site of NET metastasis, and for many people, managing the disease in their liver becomes the most challenging part of their NET journey. In this episode of NETWise, we’re going to focus on an organ that is almost never a NET primary site, but nevertheless is crucially important to many people with NETs: the liver.
In this episode of NETWise, we’re going to look at all the ways that NETs interact with nutrition–how having a NET can affect your body’s ability to use nutrients properly, and how what you choose to eat can help or hurt your NET treatment and quality of life.
When you’re fighting cancer, treating your tumors is only part of the care you need to continue living your best life. Caring for you as a person – mind, body, and spirit – is the focus of a dedicated team of interdisciplinary professionals who have a lot to offer people with neuroendocrine tumors. Just don’t be scared of the “P” word!
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Medical Disclaimer: This podcast is not intended as and shall not be relied upon as medical advice. The Neuroendocrine Tumor Research Foundation encourages all users to discuss any information found here with their oncologist, physician, and/or appropriate qualified health professional. Listening to this podcast does not constitute a patient-physician relationship. The Neuroendocrine Tumor Research Foundation does not represent that any information provided here should supplant the reasoned, informed advice of a patient’s oncologist, physician, or appropriate qualified health professional.