In this episode of NETWise, we talk about the experiences of young people living with NETs. This is an update to an episode that was originally published in 2020. A special thank you to  Dr. Aman Chauhan, a medical oncologist who leads the University of Miami Neuroendocrine Cancer Program and Dr. Jaydira Del Rivero, a medical oncologist and a board-certified endocrinologist at the National Institute of Health, for their help with this episode update. 

These patients face a specific set of challenges unique to their age and need particular kinds of help navigating the NET journey. This group of patients is often called “AYA,” which stands for Adolescents and Young Adults. For this episode, we’re going to concentrate on the “YA” part of AYA – those who are grappling with a cancer diagnosis as college students or young professionals.

Experts in this episode: 

 

 

 

Dr. Aman Chauhan, MD, is a medical oncologist who leads the University of Miami Neuroendocrine Cancer Program.

 

 

Dr. Jaydira Del Rivero, MD, is a medical oncologist and a board-certified endocrinologist at the National Institute of Health.

 

 

Dr. Manisha Shah, MD is a medical oncologist at the Ohio State University Comprehensive Cancer Center.

 

 

 

 

 

Kaylen Fletcher, LCSW, is a  support group facilitator for young adults with cancer at Beth Israel Deaconess Medical Center in Boston.

 

Mark Lewis, MD, Intermountain Healthcare

 

 

Dr. Mark Lewis, MD, is the director of gastrointestinal oncology for Intermountain Healthcare, which serves patients in Utah, Idaho, and Nevada. Dr. Lewis is also a NET patient himself. He was diagnosed with a pancreatic neuroendocrine tumor at the age of 30. 

A special thank you to Hannah Folkerts and Bethany Ross for sharing their NET journey. 

Click here to downlolad a transcript of this episode

See below for a monthly online support group gathering for adolescents and young adults sponsored by the Healing NET Foundation. We thank them for sharing this resource with our community!