Privacy Policy

Neuroendocrine Tumor Research Foundation (NETRF) values and respects your privacy. We want all users of our Website (NETRF.org) to understand how and what personal data (Data) is collected and used.

This Privacy Statement describes our privacy practices for you.

By accessing our Website or providing your information to us, you accept and agree to the practices described in this Privacy Statement.

You can skip to specific areas of interest by clicking on the links below.


What personal Data we collect and why we collect it

So that NETRF’s Website works as smoothly as possible, we use cookies.

What is a cookie?

A cookie is a bit of computer code installed in the browser that helps our Website operate. Some cookies are essential, others provide information about how people use our Website.

  • Necessary cookies
    NETRF.org uses Cookies to save the User’s session and to carry out activities that are strictly necessary for the session.
  • Other types of Cookies or third-party tools that might use them
    Some of the services listed below collect statistics in aggregated form and may not require the consent of the User or may be managed directly by NETRF.org.

Services: Analytics

The services contained in this section enable NETRF.org to monitor and analyze web traffic so that we know which content users access.

  • Google Tag Manager (Google Inc.)
    Google Tag Manager is an analytics service provided by Google Inc.
    Personal Data collected: Cookies and Usage Data.
    Place of processing: US – Privacy Policy
  • Google Analytics (Google Inc.)
    Google Analytics is a web analysis service provided by Google Inc. (“Google”). Google utilizes the Data collected to track and examine the use of this Website, to prepare reports on its activities and share them with other Google services.
    Google may use the Data collected to contextualize and personalize the ads of its own advertising network.
    Personal Data collected: Cookies and Usage Data.
    Place of processing: US – Privacy Policy – Opt Out
  • Google Ads conversion tracking (Google Inc.)
    Google Ads conversion tracking is an analytics service provided by Google Inc. that connects Data from the Google AdWords advertising network with actions performed on this Website.
    Personal Data collected: Cookies and Usage Data.
    Place of processing: US – Privacy Policy
  • Facebook Ads conversion tracking (Facebook, Inc.)
    Facebook Ads conversion tracking is an analytics service provided by Facebook, Inc. that connects Data from the Facebook advertising network with actions performed on this Website.
    Personal Data collected: Cookies and Usage Data.
    Place of processing: US – Privacy Policy

Services: Credit Card Processing

Credit card payment processing services enable NETRF.org to process donations online.  To ensure greater security, NETRF.org shares only the Data necessary to execute the transaction with the financial intermediaries handling the transaction.

  • Blackbaud Merchant Services (Blackbaud, Inc.)
    Blackbaud Merchant Services offers secure online credit card donation processing for nonprofit organizations. Blackbaud has validated compliance with the Payment Card Industry Data Security Standard (PCI DSS) and the Payment Application Data Security Standard (PA-DSS).
    Personal Data collected: Name, address, email, and credit card information.
    Place of processing: US — Privacy Policy
  • First Giving (FrontStream Holdings, LLC)
    Fist Giving is a peer-to-peer fundraising platform allowing NETRF donors to raise support for a cause or event through their friends and family. It is certified as PCI-DSS compliant by ControlCase for payment processing.
    Personal Data collected: Name, address, email, and credit card information.
    Place of processing: US — Privacy Policy

Services: Connecting with NETRF

This type of service allows you to ask questions, post comments, or join a mailing list. Third-party data processors may be used to support these operations.

  • Contact us form
    By filling in the contact form with your Data, you authorize NETRF to use these details to reply to requests for information, include you in an event or program, or honor any other kind of request as indicated by the form’s header. This includes signing up for marketing emails and newsletter.
  • Gravity Forms (Rocketgenius, Inc)
    Gravity Forms is a plug-in tool used on this Website to create forms in which Users enter information to submit a request or registration.
    Personal Data collected: Name, email, cookies, and Usage Data.
    Place of processing: US — Privacy Policy
  • Subscriber form
    NETRF encourages Users to subscribe to its monthly e-newsletter by filling out a registration form to get information on advances in research, self-care, and symptom management information, as well as invitations to events.When you receive e-newsletters or promotional communications from us, you may indicate a preference to stop receiving further communications from us – or “opt-out”—by following the unsubscribe instructions provided in the email you receive.
  • Emma
    Emma provides email marketing software products and services. Through Emma, NETRF can also store information about and track the engagement of their Users.
    Personal Data collected: Name, Email, and Usage Data.
    Place of processing: US  Privacy Policy
  • Comment form on blog posts
    When visitors leave comments on the site, NETRF collects the Data in the comments form. If accepted, your content will be posted to the site and visible to the public. Do not put personal, medical, or private information in a comment. If you leave a comment, the comment and its metadata are retained indefinitely.If you leave a comment on our site you may opt-in to saving your name and email address using cookies. This is for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.
  • Askimet (Automattic. Inc.)
    Askimet is a spam-filtering plug-in used on our Website to screen for and block pingback spam comments. It does not replace human monitoring. A NETRF staff member still reviews and approves comments individually.
    Personal Data collected: Name, email address, cookies, and usage data.
    Place of processing: US — Privacy Policy

Services: Displaying External Content

This type of service allows Users to view content hosted on external platforms directly from the pages of this Website and interact with them.

This type of service might still collect web traffic data for the pages where the service is installed, even when Users do not use it.

Video

  • YouTube video widget (Google Inc.)
    YouTube is a video content visualization service provided by Google Inc. that allows this Website to incorporate video content on its pages.
    Personal Data collected: Cookies and Usage Data.
    Place of processing: US – Privacy Policy
  • Vimeo (Vimeo, Inc)
    Vimeo is a video sharing platform that allows this Website to share video content produced by others on its pages.
    Personal Data collected: Cookies and Usage Data.
    Place of processing: US —Privacy Policy

How can I manage the installation of Cookies?

In addition to what is listed in this document, you can manage preferences for Cookies directly within your own browser and prevent – for example – third parties from installing them. Through the browser preferences, it is also possible to delete Cookies installed in the past, including the Cookies that might possibly have saved the consent for the installation of Cookies by this Website. It is important to note that by disabling all Cookies, the functioning of this Website may be compromised.

For more information about how to manage and delete cookies, visit aboutcookies.org. For more information on interest-based ads, including information about how visitors may be able to opt out of having their web browsing information used for behavioral advertising purposes, please visit aboutads.info/choices.

 

How we use your information

Services: Data combination and analysis

We may collect personal information to conduct supporter research. We may also analyze information you provide to us with other freely available public information (i.e., newspapers, websites) to create a profile of your interests, preferences, and the level of charitable giving so that we may contact you in the most appropriate way with the most relevant information, which enables us to raise funds for neuroendocrine cancer research sooner and more cost-effectively.

Please contact us if you prefer we not process your data in this way.

  • iWave Information Services, Inc.
    Personal data collected: May include prospect and donor names, mailing and email addresses, dates, donation amounts, and related data.
    Place of processing: Prince Edward Island, Canada – Privacy policy

What rights you have over your data

If you have completed a registration form or have left comments on this Website, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Whether NETRF shares your data

The Neuroendocrine Tumor Research Foundation is the sole owner of all personal information collected on this Website. The Neuroendocrine Tumor Research Foundation does not sell, share, or rent any personal information.

How NETRF safeguards your data

The Neuroendocrine Tumor Research Foundation implements comprehensive security measures to protect personal information. The Neuroendocrine Tumor Research Foundation Website is processed using Secure Sockets Layer technology to encrypt all personal information of users and donors.

The Neuroendocrine Tumor Research Foundation will take all appropriate measures to safeguard personal information against unauthorized disclosures. However, the Neuroendocrine Tumor Research Foundation cannot assure its visitors that personal information will never be disclosed in a manner that is inconsistent with this Privacy Policy. Should NETRF’s users’ information inadvertently be disclosed, NETRF will contact Users via email and post a notice at NETRF.org containing information about the breach to explain any possible exposure of personal information.

When NETRF will use your information to contact you

The Neuroendocrine Tumor Research Foundation may use personal information to process your donation, distribute e-newsletters to you, respond to your inquiries, and notify you about its programs and services. If you want to access, update, or remove your personal information, please e-mail NETRF at info@netrf.org with your first and last name and e-mail address.

How to contact NETRF

Contact Us
NET Research Foundation
321 Columbus Avenue, Suite 5R
Boston MA 02116
(617) 946-1780
info@netrf.org­