Understanding the Basics of a Neuroendocrine Tumor (NET) Diagnosis

Tune into this episode of NETWise as we define and explain how neuroendocrine cells become neuroendocrine tumors (NETs). We take a deep dive into understanding prognosis, defining stage and grade of NETs and the “upside down” nature of NET primaries and metastases. We discuss the signs and symptoms of NETs and the frustration of misdiagnosis. NET experts address the ongoing confusion between the terms NETs and carcinoid. Throughout the episode we hear from NET patients as they tell their stories of diagnosis, misdiagnosis, and treatment.

Use our episode infographics to get a visual picture of some of the things we have discussed.

Learn about the nervous system, the endocrine system, and the role neuroendocrine cells serve as translators.

Learn about symptoms and misdiagnosis. Were you given a wrong diagnosis? What were your symptoms? See how misdiagnosis happens and how symptoms can align with the wrong condition.

Visualize stage, differentiation, and grade. What do these mean and what do these say about neuroendocrine tumors?

Mentioned in this Episode:

NET Primary Sites: https://netrf.org/for-patients/nets-info/tumor-site/

Tumor Grade and Stage: https://netrf.org/for-patients/nets-info/net-grade-stage/

Find a NET Specialist: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/

Additional NET Research Foundation Resources:

Information and Resources for the Newly Diagnosed: https://netrf.org/for-patients/newly-diagnosed/

NETRF YouTube Channel: https://www.youtube.com/channel/UCSmb7Hu8YdY5XhWhfcun6bg?view_as=subscriber