About Neuroendocrine Tumors

It is a frightening and stressful experience to learn you have a neuroendocrine tumor (NET). Most people are not familiar with this uncommon cancer type. Your health care provider may not even know much about neuroendocrine tumors.  As a result, you may be searching the internet for information and answers.

The Neuroendocrine Tumor Research Foundation focuses solely on neuroendocrine tumors. We fund research in search of a cure and we offer educational resources to patients, caregivers, and families living with neuroendocrine tumors. Our website offers resources to help you. No matter where you are in your journey, we can help you:

The latest in NET News
171 K
Americans live with NETs
0 years
The median length of time that passes from first symptom to diagnosis2
0 %
Of patients had metastases at diagnosis2

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1Dasari A, Shen C, Halperin D, et al. Trends in the incidence, prevalence, and survival outcomes in patients with neuroendocrine tumors in the United States. JAMA Oncol. 2017;3(10):1335-1342.

2Singh S, Granberg D, Wolin E, et al. Patient-reported burden of a neuroendocrine tumor (NET) diagnosis: results from the first global survey of patients with NETs. J Glob Oncol. 2016;2(1):43-53.