Patient Stories

Sometimes it helps to hear how others are coping with neuroendocrine tumors. When possible, the Neuroendocrine Tumor Research Foundation (NETRF) shares NET patient stories. Find hope and inspiration in these individual  personal journeys of survivorship.

Texas Congressman Shares his NET Journey

U.S. Rep. Joaquin Castro shared his personal story and powerful message for the first time in a group setting, surrounded by others living with neuroendocrine cancer. Watch here.

The CureNET Project Created to Support NET Research

When Brittany Holzhauer received her NET diagnosis, her entire family mobilized into action, creating “The CureNET Project. Learn more here.

NETRF Awards Six Grants

NETRF awarded six new research grants totaling $1.85 million to leading academic institutions around the world. The goal of the funding is to improve current treatments for neuroendocrine tumors (NETs), an uncommon and poorly understood cancer, which occurs in the body’s hormone-producing cells.

The Healing Ability of Music

Tom Bajoras, a West Coast musician is taking advantage of gaps in his schedule to compose music to support his and your journey with NETs.

Steven Arrowsmith holding baby

Another Chance at Happiness

Challenging what life is like with NETs. Steven Arrowsmith, MD, travels the globe to treat and train others in childbirth injury surgery while living with a small bowel neuroendocrine tumor.

Learn from those who’ve been there

As part of our regional patient conferences, the Neuroendocrine Tumor Research Foundation features patient and caregiver panels. Panelists share their connection to NETs and offer insights about what they have learned along the way. Click below to view one of our most recent patient education conferences. You can also find all our educational material on our YouTube Channel.

Chicago patient and caregiver panel

Houston patient and caregiver panel

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