Share your story
If you are interested in sharing your story, let us know. Take a minute to send us a few details about your journey. We can use patient, caregiver, health care provider, and researcher stories in our newsletter, website, podcast, and at events. We will let you know where and how we can make your voice be heard. The information you submit in this form will be reviewed by NETRF staff. It will not be published or made public anywhere.