Neuroendocrine Tumor Personal Stories
Sometimes it helps to hear how others are coping with neuroendocrine tumors. When possible, the Neuroendocrine Tumor Research Foundation (NETRF) shares NET patient stories. Find hope and inspiration in these individual personal journeys of survivorship.
Celebrating the Next Chapter
After chemotherapy for pancreatic NET, Chef Jack Riebel embraces life with new optimism, doing what he enjoys most, and finding meaning by giving back.
Another Chance at Happiness
Challenging what life is like with NETs. Steven Arrowsmith, MD, travels the globe to treat and train others in childbirth injury surgery while living with a small bowel neuroendocrine tumor.
Coping with the Uncertainty of Cancer
Coping with the uncertainty of a cancer diagnosis means finding ways to take your mind off cancer, to do what you enjoy most, finding meaning and purpose.
Leaving Neuroendocrine Cancer Behind
NET Survivor Finds Hope and Inspiration That’s it—my number is up, Dave McCoy thought when he
A Blessing in Disguise?
David Van Bibber calls his neuroendocrine cancer diagnosis a blessing in disguise.it. Since his 2010 diagnosis at the age of 32, David’s priorities and perspectives have changed. As a result, he has invested more deeply in his health, his family, and his community. Now he is reaping the rewards of that investment and finding daily joy in his life.
The Road to PRRT: A Path of Self-Discovery and Growth
Finding hope and motivation in a dark place, a young NET patient describes her life leading up and following peptide receptor radionuclide therapy (PRRT).
Learn from those who’ve been there
As part of our regional patient conferences, the Neuroendocrine Tumor Research Foundation features patient and caregiver panels. Panelists share their connection to NETs and offer insights about what they have learned along the way.
Chicago patient and caregiver panel
Houston patient and caregiver panel
Indianapolis patient and caregiver panel
Tips for the newly diagnosed
Share your story
If you are interested in sharing your story, let us know. Take a minute to send us a few details about your journey. We can use patient, caregiver, health care provider, and researcher stories in our newsletter, website, podcast, and at events. We will let you know where and how we can make your voice be heard. The information you submit in this form will be reviewed by NETRF staff. It will not be published or made public anywhere.
Thank you for taking the time to show your interest in sharing your story. We will be in touch with you soon. If you have any questions, you can contact us at 617.946.1780 or info@netrf.org.