Neuroendocrine Tumor Personal Stories

Sometimes it helps to hear how others are coping with neuroendocrine tumors. When possible, the Neuroendocrine Tumor Research Foundation (NETRF) shares NET patient stories. Find hope and inspiration in these individual  personal journeys of survivorship.

15-Year NET Survivor Shares His Best Advice

Brian Bowe has weathered many storms: changes in his career, his marriage, and a tragic mass shooting. Looking back, he says one step helped him most in his recovery from neuroendocrine cancer: attending a support group.

Miss Flora to the Rescue

Like a superhero to the rescue, Flora Whitmore’s virtual playground emerged on Facebook to help children and parents through a difficult time.

The Healing Ability of Music

Tom Bajoras, a West Coast musician is taking advantage of gaps in his schedule to compose music to support his and your journey with NETs.

Steven Arrowsmith holding baby

Another Chance at Happiness

Challenging what life is like with NETs. Steven Arrowsmith, MD, travels the globe to treat and train others in childbirth injury surgery while living with a small bowel neuroendocrine tumor.

Learn from those who’ve been there

As part of our regional patient conferences, the Neuroendocrine Tumor Research Foundation features patient and caregiver panels. Panelists share their connection to NETs and offer insights about what they have learned along the way.

Chicago patient and caregiver panel

Houston patient and caregiver panel

Indianapolis patient and caregiver panel

Tips for the newly diagnosed

Share your story

If you are interested in sharing your story, let us know. Take a minute to send us a few details about your journey. We can use patient, caregiver, health care provider, and researcher stories in our newsletter, website, podcast, and at events. We will let you know where and how we can make your voice be heard.  The information you submit in this form will be reviewed by NETRF staff. It will not be published or made public anywhere.

Thank you for taking the time to show your interest in sharing your story. We will be in touch with you soon. If you have any questions, you can contact us at 617.946.1780 or

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