This is an updated NETWise episode. A special thank you to Dr. Aman Chauhan for his expert knowledge and help with this special NETWise update.

Did you know that about 1 in 4 NETs develop in the lungs?

Lung NETs are often overlooked, less frequently discussed, and more misunderstood than NETs that begin in the pancreas or GI tract. It can be frustrating for individuals and families living with a lung NET to find useful information or the right health care professional to work with. This special episode of NETWise covers all things Lung NETs.

                                               Click image to download the LungNETs PDF

Do you want to learn more about the classification of the different types of lung NETs? In this episode, we map out the lung NET classification system. While we mainly focus on typical and atypical carcinoids, we also included information about large cell and small cell lung cancer. We talk about each different type of lung NET, their distinctive characteristics, and what they have in common. We did not forget about DIPNECH. Information about this ultra-rare condition is also included in this episode.

This episode is for every person and family affected by lung NETs. We hear your call for more information. After you listen to this episode, you will have a better understanding of the classification system of lung NETs, surgical options (including the controversial ones), medical treatments, and how you can get involved with research to advocate for more approved treatment options.

NET Experts in this episode:

Dr. Aman Chauhan, leader of the neuroendocrine cancer program and co-leads the theranostics program at the Sylvester Comprehensive Cancer Center at the University of Miami in Florida

Dr. Nathalie Lui, a thoracic surgeon at Stanford Cancer Center. Dr. Lui’s surgical practice consists of general thoracic surgery with a focus on thoracic oncology and robotic thoracic surgery. Her research interests include intraoperative molecular imaging for lung cancer localization, increasing rates of lung cancer screening, and using artificial intelligence to predict lung cancer recurrence.

Robert Ramirez, DO, a thoracic and neuroendocrine oncologist, has joined Vanderbilt-Ingram Cancer Center after practicing at Ochsner Medical Center and Louisiana State University (LSU) Health Science Center in New Orleans.

Dr. Andrew Kaufman  an expert in advanced minimally invasive thoracic surgery and thoracic surgical oncology, is the Director of The Thoracic Surgery Airway Program and The Asian Thoracic Surgery Program at Mount Sinai, as well as the Associate Program Director for the Thoracic Surgery Residency Program.

A special thank you to Dave Bjork for sharing his NET patient story.

We are grateful for everyone’s participation.

Download the episode transcript here.