The Neuroendocrine Tumor Research Foundation directs your individual donations to breakthrough scientific research. Since 2005, we have funded $36 million in research projects. The Neuroendocrine Research Foundation is a 501(c)(3) organization, so all donations are fully tax-deductible to the extent allowed by law. We are grateful to you for your generosity.
The Neuroendocrine Tumor Research Foundation directs your individual donations to breakthrough scientific research. Since 2005, we have funded $36 million in research projects. The Neuroendocrine Research Foundation is a 501(c)(3) organization, so all donations are fully tax-deductible to the extent allowed by law. We are grateful to you for your generosity.
What role do genetics play in neuroendocrine tumors (NETs)? Is genetic screening right for you? Should you have your family members screened for a hereditary gene? In this episode of NETWise, we will explore the relationship between NETs and DNA and explain why your genetic code might hold important implications for treatment strategies, prognosis, and the health of family members.
You’ll hear from Gretchen Thone, a genetic counselor at Geisinger Medical Center about how hereditary conditions can be passed from parents to children and the importance of seeking professional testing and counseling. Dr. Joseph Dillon from the University of Iowa, Dr. Lauren Fishbein from the University of Colorado and Dr. Mark Lewis from Intermountain Healthcare in Utah will share their expertise about the genes that are linked to syndromes that have an increased risk of developing NETs.
You will also have an opportunity to hear from John Metzcar, a patient with Multiple Endocrine Neoplasia, Type I or “MEN-1” and Doug Karle, a patient with Von Hippel Lindau Syndrome. They will share their personal stories of living with a hereditary syndrome, the role genetic testing played in their journey and how being a father shaped their experiences and decisions with genetic testing.
While most NETs are not caused by genetic mutations, here are some syndromes that are related to neuroendocrine tumors.
Pheochromocytoma and Paraganglioma
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Medical Disclaimer: This podcast is not intended as and shall not be relied upon as medical advice. The Neuroendocrine Tumor Research Foundation encourages all users to discuss any information found here with their oncologist, physician, and/or appropriate qualified health professional. Listening to this podcast does not constitute a patient-physician relationship. The Neuroendocrine Tumor Research Foundation does not represent that any information provided here should supplant the reasoned, informed advice of a patient’s oncologist, physician, or appropriate qualified health professional.