Diagnostic Testing for Neuroendocrine Tumors

Testing can help your doctor understand the specifics of a tumor type. The results of testing help identify the treatment most likely to help your neuroendocrine tumor.

Neuroendocrine tumors
are often misdiagnosed or diagnosed late

1 in 2

U.S patients reported being diagnosed with other conditions when they had neuroendocrine cancer 14

1 in 3

 U.S. patients had NET symptoms for five years or more before being diagnosed.13

1 in 5

U.S. patients thought their symptoms could be cancer.13

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Finding May Help Predict Pancreatic NET Recurrence

NETRF-funded researchers identified a cancer cell type that is associated with non-functional pancreatic neuroendocrine tumor (pNET) recurrence. Alpha-like pNET cell expression of the protein ARX can guide prognosis.

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13National Cancer Institute. Pheochromocytoma and paraganglioma treatment (PDQ®)-patient version. 2017. https://www.cancer.gov/types/pheochromocytoma/patient/pheochromocytoma-treatment-pdq. Accessed October 23, 2018. 

14Wolin EM, Leyden J, Goldstein G, et al. Patient-reported experience of diagnosis, management, and burden of neuroendocrine tumors: results from a large patient survey in the U.S. Pancreas.2017; 16(5):639-647.