Living with Neuroendocrine Tumors
People with neuroendocrine tumors can lead meaningful, active, productive lives. Learn how you can make the most of every day.
The latest in NET News
Study Sites Added to COMPOSE Clinical Trial of PRRT with 177Lu-Edotreotide
Additional US study sites are now participating in an ongoing clinical trial of peptide receptor
The CureNET Project hosts its first annual golf tournament
Brittany Holzhauer had her whole future planned. A self-professed “dreamer” with incredible determination, she started her career as pharmacist in 2018 and with her husband Luke, welcomed her first child, Lorelei, in June of 2019.
From Education to Experience: How one family’s NET experience led to better educational resources for NET patients and families.
“In 2012, my husband was diagnosed with a neuroendocrine tumor (NET) cancer. At that time, there was little information and few treatment options,” said Suzanne Ludlow, NETRF Board Member and generous benefactor of NETRF’s second edition of “Neuroendocrine Cancer: A Guide for Patients and Families.” Suzanne lost her beloved husband Vincent in 2017, but she’s honoring his life while supporting other patients and families navigating NETs as a new member of the NETRF Board of Trustees. Read more about Suzanne and Vincent’s story here.
Attend a NET patient conference
Find support groups in your area
Check out patient advocacy groups
2Singh S, Granberg D, Wolin E, et al. Patient-reported burden of a neuroendocrine tumor (NET) diagnosis: results from the first global survey of patients with NETs. J Glob Oncol. 2016;2(1):43-53.