Neuroendocrine Cancer Guide Order Form

The Neuroendocrine Cancer: A Guide for Patients and Families guide has long been a practical, hands-on resource for understanding the tests, treatments, and day-to-day management of neuroendocrine cancer. It provides a solid foundation for those newly diagnosed, a reliable reference for longer-term survivors, and practical tips on nutrition, symptom management, thrivership, and effective communication with healthcare providers at any stage of the disease.

We are pleased to share that we are releasing a newly updated guide in Fall 2026.

The latest guide now includes:

• Expanded coverage of neuroendocrine carcinoma (NEC). The guide now provides dedicated information about NEC, including clear explanations of the differences between well-differentiated neuroendocrine tumors and poorly differentiated neuroendocrine carcinomas, as well as information about NEC diagnosis and treatment.
• A new Thrivership chapter. “Adjusting to the New Normal” looks beyond treatment and survival to address emotional well-being, finding support, adapting to change, building resilience, and living well with neuroendocrine cancer.
• A new “Why Research Matters” chapter. This section helps connect the science and research NETRF funds with progress in understanding neuroendocrine cancer and developing better treatments for patients.
• Updated statistics and information. The new edition incorporates current information about neuroendocrine cancer diagnosis, care, and the growing number of people living with the disease.
• More ways to keep learning. Throughout the guide, patients and caregivers can connect with additional NETRF resources, including the NET Knowledge Center, Neuroendocrine Cancer Provider Directory, and NETWisepodcast. The guide is designed to be a starting point for continued learning, support, and connection.
  

If you requested the printed guide this year and are still waiting for it, it’s on the way!  Questions? Please email info@netrf.org