Mount Sinai’s team has world-renowned experts who have been treating this rare disease for decades. Treatment plans benefit from our interdisciplinary care from experts in surgery, nuclear medicine, cardiology, pulmonology, cancer (oncology), blood (hematology), radiology, pathology, gastroenterology, endocrinology, and nutrition. Mount Sinai is working to find the most effective treatments, including immunotherapy, biologic agents, targeted radiation therapy, and new approaches in molecular imaging for diagnosis