Working at the Neuroendocrine Tumor Research Foundation is an opportunity to be part of a small team making a big impact. There is an urgent need to improve treatment options and educational opportunities in neuroendocrine cancer. When we do have openings, you will find them posted here. In every case, we look for motivated, passionate, talented professionals looking to be part of a dynamic team.

Careers

Director of Patient Education

The Neuroendocrine Tumor Research Foundation (NETRF) is seeking a mission-driven, collaborative, results-focused professional with skills and passion for patient education to join our team.

The Director of Patient Education will lead our education program to support the mission and goals of NETRF, a highly specialized and well-regarded foundation focused on research and education for an uncommon cancer. The Director will join a small team in a financially stable and organizationally sound foundation.

The Neuroendocrine Tumor Research Foundation’s mission is to fund research to discover cures and more effective treatments for neuroendocrine cancer and provide educational resources for NET patients and their families. NETRF is the largest private funder of neuroendocrine tumor research in the United States. Since its inception in 2005, NETRF has awarded more than $34 million in research grants to scientists at renowned research institutions around the world.

The Director of Patient Education is responsible for expanding NETRF’s presence within the patient community, leading our activities to ensure the voice of the patient is represented in our educational activities, engaging patients, families, caregivers, and clinicians to participate, collaborating with other NET and rare cancer organizations, and communicating with funders of these programs. The Director will collaborate with other NETRF team members to “connect the dots” between patient education, research, and fundraising. Reporting to the CEO, the Director will demonstrate an ability to lead as well as to be hands-on to get the job done. Strong candidates must be able to think strategically, be comfortable speaking with patients and physicians, and understand medical terminology. Clinical, healthcare or advocacy experience is preferred, and knowledge of neuroendocrine cancer is a plus.

Responsibilities

Patient Education Planning and Assessment

• Assess the neuroendocrine cancer education landscape to identify opportunities to address unmet needs, avoid duplication, and offer innovative activities.

• Identify and implement strategies to expand NETRF’s educational programs to reach new patients, families, and groups not currently engaged and in need of resources.

• Develop annual education plans to achieve the goals of the organization, leverage resources and established partnerships, and enhance NETRF’s reputation as a provider of credible and accessible patient education.

• Monitor and report metrics of effectiveness and success.

Patient Education Implementation

• Develop and lead a patient and family council to increase input into NETRF’s educational programs.

• Develop relationships with specialist physicians and patient groups to optimize collaboration.

• Implement patient education conferences, including coordination of contractors such as videographers, producers, printers, etc.

• Oversee production of the NETWise podcast series.

• Identify and update digital and printed educational content as needed.

• Manage updates to physician database and NET Guide as needed.

• Develop relationships with program sponsors and manage the sponsorship application and reconciliation process.

• Collaborate with the Director of Communications to effectively promote educational activities through NETRF social media, e-update, and other channels.

Qualifications

• 3-5+ years relevant experience in patient education.

• Experience in a scientific or medical environment is preferred.

• Minimum of Bachelor’s Degree in a related field.

• Must have an interest and aptitude to learn about neuroendocrine cancer and developments in cancer research.

• Demonstrated ability to think strategically, creatively, and collaboratively, as part of a team.

• Demonstrated ability to prioritize projects, meet deadlines, delegate tasks, and manage budgets.

• Must possess excellent communication, interpersonal and project management skills.

• Understanding of best practices for health literacy.

• Demonstrated proficiency in basic office systems such as Microsoft Office, Google Suite, Zoom, or similar tools.

• Ensure that education activities are timely and within budget.   

Submit cover letter and resume to Elyse.Gellerman@netrf.org