In the last episode of NETWise, we talked about a moment of transition – the time right after someone receives a diagnosis of NETs and the feelings of grief that can follow. This episode discusses the next part of the journey- how to navigate through the emotions, symptoms, and treatments of NETs while one continues to manage life responsibilities and relationships while living with NETs. This episode addresses survivorship and how one starts to navigate their new normal.

This is something special for NETWise. This is the pilot episode of a new project we’ve begun, translating the NETWisew series into Spanish! We’ve started with the very first episode of the show, from back in August of 2019, which lays out the most basic and foundational information about what NETs are and how they work. If we’re able to do more of these, and we hope to, it will move to its own podcast feed to be a resource for a whole new segment of the NET community. For now, please share this with Spanish-language speakers who would find it valuable, and we’ll be back next month with a brand-new episode of the series in English.

A NET cancer diagnosis can affect the emotional health of patients, families, and caregivers. In this episode, we’re going to do something a little different.

Episode 20 is part two of our deeper understanding into NET research. Advancing NET research is the core of our mission at NETRF, and it’s

Episode 19 is the first of two episodes that will discuss a topic near and dear to us here at NETRF: NET research. Advancing NET

While most neuroendocrine tumors are low-grade and slow growing, there are some that are high-grade and very aggressive. These high-grade NETs and NECs are treated very differently. In the newest episode of NETWise, we turn the spotlight on high-grade NETs, talk with NET physicians about the treatment challenges, and hear from a patient and caregiver about dealing with the diagnosis.

Very often, the liver is the first and most significant site of NET metastasis, and for many people, managing the disease in their liver becomes the most challenging part of their NET journey. In this episode of NETWise, we’re going to focus on an organ that is almost never a NET primary site, but nevertheless is crucially important to many people with NETs: the liver.

In this episode of NETWise, we’re going to look at all the ways that NETs interact with nutrition–how having a NET can affect your body’s ability to use nutrients properly, and how what you choose to eat can help or hurt your NET treatment and quality of life.

When you’re fighting cancer, treating your tumors is only part of the care you need to continue living your best life. Caring for you as a person – mind, body, and spirit – is the focus of a dedicated team of interdisciplinary professionals who have a lot to offer people with neuroendocrine tumors. Just don’t be scared of the “P” word!

Pheochromocytomas and paragangliomas are rare neuroendocrine tumors that occur inside or outside the adrenal glands. Affecting approximately 1 in 3,000 people, pheochromocytomas and paragangliomas are