What to Do
It’s not easy to hear you or a loved one has cancer; especially a rare cancer. You probably have a lot of questions or concerns, or you may be feeling overwhelmed. We encourage you to use the resources section of our website to learn more about neuroendocrine cancer. If you are well informed and understand your diagnosis, so you can make informed decisions about treatment. Below are some steps you can take to learn more about neuroendocrine cancer and the path that best suits your journey.
It’s not easy to hear you or a loved one has cancer; especially a rare cancer. You probably have a lot of questions or concerns, or you may be feeling overwhelmed. We encourage you to use the resources section of our website to learn more about neuroendocrine cancer. If you are well informed and understand your diagnosis, so you can make informed decisions about treatment. Below are some steps you can take to learn more about neuroendocrine cancer and the path that best suits your journey.
Visit our Doctor Database
The NET Research Foundation believes that all neuroendocrine tumor patients have the right to access all information needed to make informed decisions regarding their care. We also recognize that choosing a physician is a critical factor in the quality of patient care. Our Doctor Database serves as a comprehensive listing of doctors across a wide variety of medical specialties. Every doctor comes recommended by one or more neuroendocrine cancer patients. Please use our Doctor Database for help finding a physician well-versed in treating neuroendocrine tumors.
Doctor Database
The NET Research Foundation believes that all neuroendocrine tumor patients have the right to access all information needed to make informed decisions regarding their care. We also recognize that choosing a physician is a critical factor in the quality of patient care. Our Doctor Database serves as a comprehensive listing of doctors across a wide variety of medical specialties. Every doctor comes recommended by one or more neuroendocrine cancer patients. Please use our Doctor Database for help finding a physician well-versed in treating neuroendocrine tumors.
Doctor Database
Types of Treatment Available
Treatment must be tailored to each patient’s tumor burden and symptoms. Treatments may be focused on inhibiting tumor growth or symptom relief. Often, this means that any given treatment plan may consist of a combination and/or series of several treatments. Be sure to discuss your treatment options thoroughly with your physician(s). Ultimately, all treatment decisions should be made by the patient. For a general guide to NETs, including symptoms, diagnosis, and treatment options, please refer to our Carcinoid Tumors, Pancreatic NETs, and Pheochromocytoma pages.
Treatment must be tailored to each patient’s tumor burden and symptoms. Treatments may be focused on inhibiting tumor growth or symptom relief. Often, this means that any given treatment plan may consist of a combination and/or series of several treatments. Be sure to discuss your treatment options thoroughly with your physician(s). Ultimately, all treatment decisions should be made by the patient. For a general guide to NETs, including symptoms, diagnosis, and treatment options, please refer to our Carcinoid Tumors, Pancreatic NETs, and Pheochromocytoma pages.
Join a Patient Group
The NET Research Foundation is committed to supporting patients, families, friends, and caregivers affected by neuroendocrine tumors. We welcome you to learn about neuroendocrine tumors and become an active, engaged member of the neuroendocrine tumor community.
Patient Groups
The NET Research Foundation is committed to supporting patients, families, friends, and caregivers affected by neuroendocrine tumors. We welcome you to learn about neuroendocrine tumors and become an active, engaged member of the neuroendocrine tumor community.
Patient Groups
NET Patient Survey
The International Neuroendocrine Cancer Alliance (INCA) and Novartis found a profound impact on quality of life from the first global survey of patients with neuroendocrine tumors (NETs). Almost 2,000 patients from 12 countries completed the survey, and the results provide compelling data documenting the impact of NETs on people living with this rare disease.
See Infographic
The International Neuroendocrine Cancer Alliance (INCA) and Novartis found a profound impact on quality of life from the first global survey of patients with neuroendocrine tumors (NETs). Almost 2,000 patients from 12 countries completed the survey, and the results provide compelling data documenting the impact of NETs on people living with this rare disease.
See Infographic
Educational Resources
Clinical Trials
Clinical trials involve testing on patients to determine whether a therapy is a safe and effective method of treatment and/or prevention. It is through clinical trials that medical discoveries and breakthroughs are made. Clinical trials provide critical information that these doctors and regulators, like the FDA, need to assess the safety and efficacy of particular therapies in humans. Clinical Trials can also provide patients with new therapies that were not previously available. Before you make any decisions regarding participation in a clinical trial, talk to your physician. For the latest information on Clinical Trials, visit clinicaltrials.gov
Clinical trials involve testing on patients to determine whether a therapy is a safe and effective method of treatment and/or prevention. It is through clinical trials that medical discoveries and breakthroughs are made. Clinical trials provide critical information that these doctors and regulators, like the FDA, need to assess the safety and efficacy of particular therapies in humans. Clinical Trials can also provide patients with new therapies that were not previously available. Before you make any decisions regarding participation in a clinical trial, talk to your physician. For the latest information on Clinical Trials, visit clinicaltrials.gov
Patient Assistance and Support
There are a number of organizations you can turn to for patient information, support, and financial resources. Below you will find links to financial support programs, treatment travel resources, and prescription medication patient assistance programs.
There are a number of organizations you can turn to for patient information, support, and financial resources. Below you will find links to financial support programs, treatment travel resources, and prescription medication patient assistance programs.
