About NETs Neuroendocrine tumors (NETs) are rare and originate from specialized cells called neuroendocrine cells. These cells, which have features like nerve cells and hormone-producing cells, release hormones into the blood in response to signals from the nervous system. Neuroendocrine tumors can occur throughout the body, but primary sites include the gastrointestinal tract, pancreas, rectum, lungs, and appendix. The majority of neuroendocrine tumors can be divided into two classes: carcinoid and pancreatic neuroendocrine tumors. Over 100,000 people in the U.S. are living with neuroendocrine cancers. It is estimated that over 12,000 people are diagnosed each year, and the number of those diagnosed is increasing by more than five percent annually.
Newly Diagnosed It’s not easy to hear you or a loved one has cancer; especially a rare cancer. You probably have a lot of questions or concerns, or you may be feeling overwhelmed. We encourage you to use the resources section of our website to learn more about neuroendocrine cancer. If you are well informed and understand your diagnosis, you can make informed decisions about treatment.
Nuclear Imaging and Therapies Search Map
This search tool/map is to help patients and physicians identify which centers are currently offering Ga68 PET/CT, PET/MRI and PRRT for either Neuroendocrine Tumors or Prostate Cancer. Learn more and use the map tool at the NorCal CarciNET site: https://norcalcarcinet.org/ga68map
Doctor Database The NET Research Foundation believes that all neuroendocrine tumor patients have the right to access all information needed to make informed decisions regarding their care. Our Doctor Database serves as a comprehensive listing of doctors across a wide variety of medical specialties. Please use our Doctor Database for help finding a physician well-versed in treating neuroendocrine tumors.
Patient Groups The NET Research Foundation is dedicated to supporting patients, families, friends, and caregivers affected by neuroendocrine tumors. We welcome you to learn about neuroendocrine tumors and become an active, engaged member of the neuroendocrine tumor community.
NET Community and International Resources The NET Research Foundation is committed to helping NET patients find the resources they need. If you are looking for more information on NETs or resources outside of the United States, please see our list of NET Community organizations.
Neuroendocrine Tumor Patient & Caregiver Educational Conferences The NET Research Foundation’s Patient & Caregiver Educational Conferences draw neuroendocrine cancer patients and caregivers from across the country. Since our first conference in 2009, more than 3,000 attendees have participated in our events, and they continue to provide a vitally needed opportunity for education and fellowship. To ensure there are no financial barriers to participation, all conferences are offered free of charge. The NET Research Foundation typically holds four Patient & Caregiver Educational Conferences per year.
NET Research Foundation’s News and eUpdate Check out the latest NETRF news and our monthly eUpdate, which provides the latest information on advances in research, current research grants, community events and information, fundraisers, and more.
Carcinoid NETs Health Storylines Developed in partnership with patients living with carcinoid cancer and neuroendocrine tumors, this app makes it easy to record your symptoms, nutritional concerns, moods, medication, and more.
Tumor Tissue Donation
By contributing your tumor tissue through a surgery or biopsy, you make it possible for researchers to make a working copy of your cancer type that will continually grow in a laboratory. This copy is called a “model” and it makes it easy for researchers to study your cancer type and test treatment ideas.
NET Research Foundation
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