November 10 is World NET Cancer Awareness Day, which helps to raise awareness about NET cancers and alert the public to the need for improved diagnostics, information, care, and research.
In 2017 we learned a lot more about the impact and effect of NET cancer from important published research. Today, seven in every 100,000 people are diagnosed with NETs each year. An estimated 170,000 are living with NETs, almost twice what was estimated in 2008. Recently published research found that the incidence of NETs has increased seven-fold between 1973 and 2012. While the reasons for this increase are not entirely known, most NET experts say better diagnostic tools are helping to identify more cases. Data also suggest that NET patients are living longer.
It takes five to seven years on average from initial onset of symptoms to proper diagnosis. Consequently, 58 percent of patients are diagnosed at an advanced stage where the disease has spread to other organs. NET patients are regularly misdiagnosed for years and often treated for more common conditions, such as IBS, Crohn’s and Colitis.
In the last year, researchers published insightful information about both the experience and prevalence of NETs. To bring this information to a broader audience, the NET Research Foundation teamed up with the International Neuroendocrine Cancer Alliance (INCA) to create a lively and bright awareness campaign.
We hope you will join us in sharing these materials with your family, friends, and connections. Our hope is that with increased awareness, fewer people will endure delays in diagnosis and treatment. Use the hashtag “#letstalkaboutNETs” to spread the word.
Links to 2017 published research on NET prevalence and patient experience
JAMA Oncol. 2017 Oct 1;3(10):1335-1342. doi: 10.1001/jamaoncol.2017.0589.
J Glob Oncol. 2016 Jun 8;3(1):43-53. doi: 10.1200/JGO.2015.002980. eCollection 2017 Feb.
Pancreas. 2017 May/Jun;46(5):639-647. doi: 10.1097/MPA.0000000000000818.