How to find a NET Specialist
Neuroendocrine tumors (NETs) are a rare cancer type. Your primary care provider or community oncologist may have never before seen a case. The latest nuclear medicine diagnostic and treatment techniques may not be offered in your community hospital. You may need to consult with a surgeon, radiologist, medical oncologist, radiation oncologist, and gastroenterologist at various stages in your treatment. For all these reasons and more, you may be having trouble finding the right physician.
What to do when you can’t find a doctor
There are a number of resources where you can search for physicians who focus on the diagnosis and treatment of NETs.
- NETRF maintains a doctor database and a listing of NET treatment programs. You can also scroll through our video library of talks from physicians across the country
- NET Advocacy Groups are located all around the world. These organizations may maintain lists of physicians or be able to help you locate specialists in your area.
- NET Patient Support Groups meet in communities across the U.S. These groups are run by patients and caregivers. Organizers and participants commonly know a lot about the physicians in the region.
- Physicians with specialized interests or training often organize as a professional association. A few groups focus specifically on NETs.
- North American Neuroendocrine Tumor Society (NANETS)
- European Neuroendocrine Tumor Society (ENETS)
Other times physicians organize by sub-specialty such as surgery, nuclear medicine, or medical oncology. Search the internet to find a physician association. Look on their websites for membership listings or call the association office for help finding a specialist.
- Research resources. Physicians who specialize in a rare cancer like NETs may be conducting clinical research. You can search on PubMED or Google Scholar for scientific articles about your diagnosis. Look at the names and institutions of the authors. Or look for physicians conducting NET clinical trials at clinicaltrials.gov.
- The National Cancer Institute (NCI) designates cancer centers that deliver cutting-edge cancer care. NCI-Designated Cancer Centers commonly are connected to a medical school and actively conduct clinical research.