NETRF’s NYC patient educational conference, on November 10, 2016, featured international perspectives on neuroendocrine cancer research and treatment. More than 150 attendees heard from 13 speakers and learned about the newest advances in neuroendocrine cancer treatment and care. Experts from Germany and Australia joined the conference via live video conferencing to share their knowledge.
Conference presentations included the latest information on clinical trials, immunotherapy research, PRRT, surgery options, symptom management, and integrative psychosocial health. Videos of the conference presentations will be available for online viewing in the near future. Please follow NETRF on social media and netrf.org for updates on their availability.
The program took place on World NET Cancer Awareness Day, a day set aside around the world to increase awareness of neuroendocrine cancers and honor the patients and families fighting the disease.
A highlight of the meeting was the presentation of the results of a global NET patient experience survey. The global survey of 1,928 patients demonstrated the various unmet needs and burden of disease among NET patients. Patients reported a mean time of 52 months between first symptoms and diagnosis. Most survey participants (71%) reported a moderate to substantial negative impact of NETs on their daily life, including overall energy levels (70%), finances (50%), and the ability to perform everyday household chores (45%) or care for family (39%). For more information on the study results, see the infographic here: Infographic-Global-NET-Survey-MDT-March-2015-FINAL.pdf
Mark Your Calendars
NETRF’s next patient education conference will be on Saturday, February 4, 2017. It will be held at the Stanford University Arrillaga Alumni Center in Stanford, California. Watch netrf.org for more information and registration details.