Category: Patient Care

About NETRF

The Neuroendocrine Tumor Research Foundation (NETRF) is the leading private funder of research into causes and treatments of neuroendocrine tumors (NETs) to improve and extend the lives of those living with NETs.

Blog

COMPETE Clinical Trial

A new phase III clinical trial called COMPETE (NCT03049189 ) compares everolimus, an oral targeted therapy, to PRRT with Lu-177 edotreotide, a radiopharmaceutical under development,

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Blog

A Look at Lung NETs

Approximately 20% of all primary lung tumors are neuroendocrine (Hung 2019), including: Typical carcinoid (TC) Atypical carcinoid (AC) Small cell carcinoma (SCC) Large cell carcinoma

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Blog

Staying Safe from the Flu

Living with cancer increases your risk for complications from influenza (“flu”). If you have cancer now, have had cancer in the past, or live with

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Blog

A Great Day for a Victory Lap

Almost 2 years after his NET diagnosis, Maros Felsen organizes and runs a 5K neuroendocrine cancer fundraiser. He’s proof for all that you can lead an active, meaningful, and successful life with neuroendocrine cancer.

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Steven Arrowsmith holding baby
Blog

Another Chance at Happiness

Challenging what life is like with NETs. Steven Arrowsmith, MD, travels the globe to treat and train others in childbirth injury surgery while living with a small bowel neuroendocrine tumor.

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Blog

NETRF launches NETWise podcast

Physicians discuss the basics of NET diagnosis, classification, and progression. Particular attention is paid to the frequency of misdiagnosis. Two patients share their stories of delayed NET diagnosis and treatment due to the misidentification of symptoms.

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