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Category: Patient Care

Blog

Study Focuses on Matching Patients with Rare Cancers and Cancer of Unknown Primary to Targeted Treatments

A patient advocacy-led clinical research study aims to determine if patients who have rare tumors can benefit from matched molecular therapy based on the results of their genomic profiling. Patients with neuroendocrine tumors and unknown primaries may be eligible for this study. Sponsored by the TargetCancer Foundation, in collaboration with Foundation Medicine Inc., the TCF-001 TRACK (Target Rare Cancer Knowledge) Study uses next-generation sequencing to develop a comprehensive genomic profile of each participant’s tumor as well as their plasma circulating cell-free DNA (blood).

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Blog

COVID-19 and NETs: What We Now Know

Oncologist Mark Lewis, MD, discusses what we have learned about COVID-19 and NETs in the first six months of the pandemic in this video interview with NETRF CEO Elyse Gellerman.

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Blog

New NETWise Podcasts on NET Sites

Beginning in August, the NETWise podcast is putting together primary site-specific episodes. NETs can arise almost anywhere in the body, but most start in the gastrointestinal tract, lung, and pancreas.

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Virtual Patient Conference Attendee
Blog

October 10 Virtual Conference

Check out some of the things we are planning for our October 10th virtual conference for patients and families. We guarantee it’s not your average NET conference. Because you set the agenda!

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Blog

15-Year NET Survivor Shares His Best Advice

Brian Bowe has weathered many storms: changes in his career, his marriage, and a tragic mass shooting. Looking back, he says one step helped him most in his recovery from neuroendocrine cancer: attending a support group.

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