Category: Living with NETs

About NETRF

The Neuroendocrine Tumor Research Foundation (NETRF) is the leading private funder of research into causes and treatments of neuroendocrine tumors (NETs) to improve and extend the lives of those living with NETs.

Blog

Living Well with Serious Illness

Dispelling Myths about Palliative Care The goals of palliative care according to Steven Pantilat, MD, University of California, San Francisco, are pretty straightforward—to do as

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Blog

Lessons of NET Cancer

PRRT Patients Tell Their Stories Following the early 2018 FDA approval of the first Peptide Receptor Radionuclide Therapy (PRRT) using lutetium Lu-177 dotatate, many people are

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Blog

Exercise and Cancer

[breakout] Talk to your doctor before changing your activity level. You may need to make important modifications based on medication you are taking, surgery you

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Blog

Finding Inspiration in Being Rare

A Journey in Advocacy Greta Stifel isn’t just “rare,” she’s triple “rare.” After being diagnosed with Carcinoid Cancer, she simultaneously developed Carcinoid Syndrome, and recently

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Blog

First PRRT Approved by U.S. FDA

New treatment for GI and pancreatic NETs The U.S. Food and Drug Administration (FDA) has approved Peptide Receptor Radionuclide Therapy (PRRT) with a new radiopharmaceutical for

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