Category: Living with NETs

About NETRF

The Neuroendocrine Tumor Research Foundation (NETRF) is the leading private funder of research into causes and treatments of neuroendocrine tumors (NETs) to improve and extend the lives of those living with NETs.

Blog

Lessons of NET Cancer

PRRT Patients Tell Their Stories Following the early 2018 FDA approval of the first Peptide Receptor Radionuclide Therapy (PRRT) using lutetium Lu-177 dotatate, many people are

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Blog

Exercise and Cancer

[breakout] Talk to your doctor before changing your activity level. You may need to make important modifications based on medication you are taking, surgery you

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Blog

Finding Inspiration in Being Rare

A Journey in Advocacy Greta Stifel isn’t just “rare,” she’s triple “rare.” After being diagnosed with Carcinoid Cancer, she simultaneously developed Carcinoid Syndrome, and recently

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Blog

First PRRT Approved by U.S. FDA

New treatment for GI and pancreatic NETs The U.S. Food and Drug Administration (FDA) has approved Peptide Receptor Radionuclide Therapy (PRRT) with a new radiopharmaceutical for

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Blog

CAR T-Cell Therapy Earns Another FDA Approval

He is a pioneer whose work has helped extend the horizon of cancer care, creating a new category of individualized immunotherapy. Carl June, MD, has conducted 25 years of scientific research to advance CAR T-cell therapy. And all that knowledge is now helping to tackle NETs.

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Blog

Depression and Cancer

It is common to feel sad, discouraged, or moody after a cancer diagnosis. You may be facing new limits on what you can do and feel anxious about treatment outcomes and the future. It may be hard to adapt to a new reality and to cope with the changes that come with the diagnosis and the demands of treatment.

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Blog

The Power of Self-Advocacy

This young PNET patient knew something was wrong, but his doctor didn’t believe him. Since this PNET patient was also an oncologist, he asserted the need for further testing to clarify the diagnosis. In a guest blog Mark Lewis, MD, shares insights on listening to your body and getting doctors to listen to you.

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