- A world where patients are not waiting years for a diagnosis, going from doctor to doctor seeking answers. And not finding the answers they need.
- More and better treatments for all NET patients, so they can live longer and fuller lives.
- Answers to our questions. Why do neuroendocrine cells become cancer cells, grow, and spread? Why are some tumors aggressive and others stable?
- Additional scientists who decide they want to study the mysteries of NETs and join our community of dedicated researchers.
To make our wishes come true, we are turning to our community of supporters. Patients and families affected by NETs come together with remarkable candor, cooperation, and compassion. Scientists are excited about their work and the potential for discovery. You can read about a few examples in this eUpdate. NETs are often overlooked and misunderstood when federal funding is distributed. NETRF fills an important role—funding research that is not being funded by government and other sources.
At the November Indianapolis patient and family conference, attendees made new friends and new opportunities to share ideas and inspiration.
NETRF drives innovative research for NETs, like the remarkable small intestine cells that Hans Clevers is growing in laboratory dishes in the Netherlands to pioneer a new way to test new therapies.
It is all on behalf of people like Meg, whose parents Gaye and David in this issue graciously share the inspiring story of their daughter as she faced NETs with remarkable courage and dignity.
This year we have more solid research grant applications than we can fund. We need your help. Please consider a gift to NETRF for our year-end appeal.
I see the potential to reduce heartache and stop the suffering caused by this disease if we can work together. Please be part of the caring and courageous community who will fund the search for progress.
Thank you and happy holidays,
Chief Executive Officer