Be Heard: Share your experience with Carcinoid Syndrome with the FDA

BE HEARD: Share your story with staff of the FDA  about your experience or your loved one’s living with #CarcinoidSyndrome (CS).  

#FDA’s Patient Affairs and NORD are hosting a #PatientListeningSession on Carcinoid Syndrome. These sessions are private, confidential virtual meetings where a small group of people affected by CS can share first-hand with FDA staff their experiences of living with this condition. Participants are selected based upon many factors including diversity, age, geographic location, symptoms, disease severity, and other factors.

FDA staff wants to hear from individuals (patients and caregivers) affected by neuroendocrine tumor(s) with CS, to better understand their perspectives on how this condition and symptoms impact their life, symptom management, and symptom changes over time.

There are a limited number of openings for participating in the session on Thursday, April 27. If you are interested in participating, please fill out this brief interest survey by March 30: