In this episode of NETWise, we’re diving into one of the more aggressive forms of neuroendocrine cancer: neuroendocrine carcinoma (NEC). While many neuroendocrine tumors are slow-growing and manageable over time, NEC is different—fast-moving and requiring swift, specialized care.

  • We’ll guide you through the essential information about NEC, including:
    What neuroendocrine carcinoma is and how it differs from other NETs
  • The diagnostic process: what to expect and how doctors identify this disease
  • Current treatment options and what patients and caregivers should know

If you or a loved one has recently received an NEC diagnosis, this episode is designed to help you start understanding the road ahead.

Resources

https://www.thehealingnet.org/high-grade-neuroendocrine

High Grade Neuroendocrine Carcinoma group:
https://www.facebook.com/groups/485526089875319/

Acknowledgements

Dr. Carl Gay, MD, PhD, is a thoracic medical oncologist and research scientist at the University of Texas MD Anderson Cancer Center.

Dr. Aman Chauhan, MD, is a medical oncologist at the Sylvester Comprehensive Cancer Center at the University of Miami, where he leads the neuroendocrine cancer program.

Dr. Renuka Iyer is a medical oncologist at Roswell Park Comprehensive Cancer Center in Buffalo, New York.

Susan Meckler Plummer, RN, runs an online support group for patients with neuroendocrine carcinoma.

Patient Acknowledgements

A special thank you to Deb Roberston and Lori Dolnick for sharing their stories.
Click here to download a transcript of this episode.