In this episode of NETWise, we continue our focus on neuroendocrine carcinoma, a rare and aggressive form of neuroendocrine cancer. While our previous episode explored diagnosis and treatment, this discussion centers on the unique challenges faced by caregivers. Caring for someone with neuroendocrine carcinoma can be incredibly intense due to the cancer’s rapid progression and limited treatment options. This episode highlights the emotional and physical toll of caregiving—and emphasizes the vital importance of self-care for those supporting a loved one through this difficult journey.

Resources:

Professional acknowledgements:

Jodi Kolada, MA, is the Director of Caregiver Outreach and Non-Clinical Team Member Education at Well-Spring Solutions in Greensboro, NC. Jodi has extensive work in caregiver education and caregiver self-care.

Robin Lockridge, Ph.D

Dr. Robin Lockridge, Ph.D. is a neuropsychologist at the National Cancer Institute at the National Institutes of Health. She frequently works with caregivers.

A sincere thank you to Holly Jensen Corte and Shannon Page for sharing their neuroendocrine carcinoma experiences, and Jean Carney and Susan Meckler Plummer for sharing their neuroendocrine carcinoma caregiving experiences.
Click here to download a transcript of this episode.