NETRF Anniversary - 15 Years Closer to a Cure

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15 Years Closer to a Cure

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Million invested in research
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Projects funded on
four continents
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Donations received since 2005

Celebrating Progress

The Neuroendocrine Tumor Research Foundation (NETRF) has come a long way since we were founded as Caring for Carcinoid by Nancy Lindholm in 2005. ​Our founders can be proud of how NETRF has grown into the largest private funder of NET research, with more than $30 million invested around the world. As we launch our year-end campaign, we celebrate our 15th Anniversary – Closer to a Cure. NETRF-funded researchers have made real progress in understanding neuroendocrine tumors.

Our work is not done. There is a real sense of urgency to support more NET research. Whether you have supported us in the past or are new to our community, join us now in the search for treatments and cures.  Please make a gift to NETRF during our year-end campaign. Thank You!

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Community Reflections

This organization has really been responsible for my being able to have a life that's not dominated by having NET cancer.
Anne and John FarrellNETRF Donors
Anne and John Farrell
Like so many NET patients and their families, Terry and I didn't know what a NET was until my diagnosis in 2010.
Todd and Terry GilmanNETRF Donors
Todd and Terry Gilman
NETRF has been able to bring so many researchers to this area that would not be working in this field without NETRF grants. You have been building the community of NET researchers.
James EisnerNETRF Donor
James Eisner
My wife and I became interested in NETRF as a way to move research forward for a disease that is underserved and underfunded. We hope that with increased funding and awareness we can ultimately cure this disease.
Dr. William SellersBOSA Member Emeritus
Dr. William Sellers
NETRF works tirelessly to support the community's needs, continually evolving to supply the best information possible.
Laran HyderFormer Director of Education
Laran Hyder
The reason I give annually is that it’s remarkable to see how many grants have been given to scientists. That gives us hope.
Dale Conklin NETRF Donor
Dale Conklin
The Petersen Foundation is happy to be associated with the Neuroendocrine Tumor Research Foundation and so proud of its accomplishments.
GIGI CARLETON AND KEVIN STRAUCHTrustees of the Margie and Robert E. Petersen Foundation
GIGI CARLETON AND KEVIN STRAUCH
I was brought into the NETRF community because of a unique scientific expertise. It has been amazing to interact with other outstanding scientists and clinicians who have made major contributions to our understanding of neuroendocrine tumor biology and have expanded treatment options for patients.​
GUILLERMINA (GIGI) LOZANO, PHD​Member, Board of Scientific Advisors​
GUILLERMINA (GIGI) LOZANO, PHD​
“Living in South Africa with NETs and not having access to NET specialist teams has been made easier by NETRF. NETRF helps me keep up with all the latest developments in the world of NETs. Most importantly, living with a condition without an accurate prognosis leaves a window for hope for a cure and NETRF gives me so much hope a cure will be found one day.”​
GREG BLEND​Donor​
GREG BLEND​
I was drawn in by Nancy Lindholm, her passion and her laser focus. What she was doing seemed different, impactful and could help patients.
LAUREN ERBFormer NETRF Executive Director
LAUREN ERB
My mother died in 2000 from carcinoid cancer/NET tumors, and at the time, so little was known about the disease, it was like being in the Middle Ages. That spurred my initial involvement with NETRF.
JONATHAN SOROFFNETRF Donor
JONATHAN SOROFF
I wanted to find a way to honor and support my beautiful sister in her journey and fight with this rare cancer and a way for her not to feel alone in her struggles. I love my sister to pieces and would do anything I could for her. I also wanted to raise awareness, so I started a fundraising bike ride that has been going for over seven years now and I am proud to say that with the generosity of family, friends and strangers we have raised over $10,000! Debbie is the epitome of beauty, strength, and hope.
VICKI DAILEYNETRF Donor and Fundraising Event Organizer for Bikng for Debbie
VICKI DAILEY
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NETRF Accomplishments

2005
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2011
2015
2015
2017
2018
2019
2019
2020
2020

Caring for Carcinoid Foundation is founded by Nancy Lindholm

NETRF-funded research discovers genes never before implicated in neuroendocrine cancer

1st NETRF research symposium

NETRF grantee discovers key predictor gene of NET response to chemotherapy

New mutations in DAXX/ATRX genes found in 40% of pNETs by NETRF funded research

Caring for Carcinoid changes name to Neuroendocrine Tumor Research Foundation

Margie & Robert E. Petersen Foundation donates $15 million to NETRF

NET organoid tumor models created at Hubrecht Institute

NETRF funds first project to study lungNETs

NETRF-funded researchers discover new subtypes of non-functional pNETs that may help predict recurrence

NETRF launches NETWise patient podcast and Patient Guide

NET cell line created at the Broad Institute. Cell Line Prize awarded to German scientist.

Spark Hope Campaign celebrates $10 million raised for research