- Carcinoid Cancer Foundation (CCF)
- Neuroendocrine Cancer Awareness Network (NCAN)
- Healing Net Foundation
- Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)
- NorCal CarciNET Community
- Big Apple NETs
Lexicon Pharmaceuticals just announced the release of their Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patient lives, while also exploring physicians’ approaches to treating the disease. The survey was created with input from NETRF and the following organizations:
The survey hopes to shine a much needed spotlight on the detrimental effects that carcinoid syndrome has on patient lives, while raising awareness and understanding in the physician communities of this disease.
To participate in the survey, CLICK HERE.
To learn more about the survey, watch this video.