Assistance & Support for Neuroendocrine Tumors

You are not alone. There are resources to help you on your journey.  There is a close-knit community of NET survivors, caregivers, and health care providers to help. Others have found information, insight, and inspiration by connecting with the NET community.

NETRF does not provide patient financial assistance, but a few other nonprofit organizations do.

National Organization for Rare Disorders (NORD) has a Patient Assistance Program for medication-specific assistance, disease-specific assistance, and clinical trial programs.

Cancer Care is a national nonprofit organization that provides free, professional support services to anyone affected by cancer.

Social Security Agency Benefits for People with Disabilities Programs are federal programs that assist people with disabilities. Only individuals who meet medical criteria may qualify for benefits under either program.

Air Charity Network provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis.

GoodDays (formerly the Chronic Disease Fund) is a full service financial and medical assistance organization, which helps underinsured patients obtain the medications they need.

Patient Advocate Foundation assists patients with medical debt crisis, insurance access issues, and job retention issues.

Learn from those who’ve been there

As part of our regional patient conferences, the Neuroendocrine Tumor Research Foundation features patient and caregiver panels. Panelists share their connection to NETs and offer insights about what they have learned along the way.

Chicago patient and caregiver panel

Houston patient and caregiver panel

Indianapolis patient and caregiver panel

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