Diagnostic Testing for Neuroendocrine Tumors

Testing can help your doctor understand the specifics of a tumor type. The results of testing help identify the treatment most likely to help your neuroendocrine tumor.

Neuroendocrine tumors
are often misdiagnosed or diagnosed late

1 in 2

U.S patients reported being diagnosed with other conditions when they had neuroendocrine cancer 14

1 in 3

 U.S. patients had NET symptoms for five years or more before being diagnosed.13

1 in 5

U.S. patients thought their symptoms could be cancer.13

The latest in NET News

A Blessing in Disguise?

David Van Bibber calls his neuroendocrine cancer diagnosis a blessing in disguise.it. Since his 2010 diagnosis at the age of 32, David’s priorities and perspectives have changed. As a result, he has invested more deeply in his health, his family, and his community. Now he is reaping the rewards of that investment and finding daily joy in his life.

A novel agent for imaging NETs

There is a critical need to develop improved diagnostic tools for non-invasive, early detection of NETs in a broader range of patients. New grant-funded research will work towards this goal.

Patients and caregivers discuss lessons learned on their journey.  

Patients and physicians discuss the importance of finding a specialist.

Search for NET specialists

Find NET doctors, treatment programs, and support groups near you

Get connected.
Follow us on social media.

13National Cancer Institute. Pheochromocytoma and paraganglioma treatment (PDQ®)-patient version. 2017. https://www.cancer.gov/types/pheochromocytoma/patient/pheochromocytoma-treatment-pdq. Accessed October 23, 2018. 

14Wolin EM, Leyden J, Goldstein G, et al. Patient-reported experience of diagnosis, management, and burden of neuroendocrine tumors: results from a large patient survey in the U.S. Pancreas.2017; 16(5):639-647.